...and we go back down...

Lila is sleeping right now. She fell asleep at about 4:00PM after a tough day for her. We were outside a lot today and it was very hot. She didn't do too much active but just breathing in that heat is work for her. Her breathing is labored like I haven't seen in a couple of weeks. I hope we aren't going into a downturn. I really don't want to go to the hospital. That's always there in the back of my mind when she gets this way. I am so tired of the constant watching, fear, and worry but in some ways I have forgotten how to live any other way. I hope constantly it seems, that Denver will give us answers and our family can relearn what normalcy looks like.