Tuesday, July 14, 2009

Today she had CT of her sinuses, a CT of her lungs, a test for nitrous oxide in her lungs, she learned how to use a peak flow meter, met with a child behavior expert, was examined by two doctors. We broke free for dinner with Sam and now we are at the hospital all night for observation. Tomorrow we see the pulmonary doc and she gets a ph probe. That's rough on her.

I will update then. One thing I have to tell is that out hospital room has these giant windows looking out on greenspace and the Colorado sky. Tonight as I was thinking of the day the nurse said, "look!". And outside were two rainbows arching across the sky. Maybe it's prooftexting or sentimentalizing, but it felt like a promise from God.

We continue to be so grateful for the emails and phone calls. Hope is palpable in our family tonight.

1 comment:

  1. Hang n there! 2 rainbows?!!! I, too, feel that they are a beacon of hope. I am so glad for the support of the RMH families. No one knows what this is until they have lived through it. Again, Our Father is giving to you and Ben and the girls the comfort that I pray for you each day. Mostly though for Lila's healing. Tests are so hard to endure and the waiting for results takes so much out of you. It sounds like your medical support is really good. I've seen Jody go through just some minor things when little and it hurts that you can't take their fears and pain into your own body. Remeber this, Lila is so very,very lucky to have parents who care so much and are willing to do all and then more to help her. THAT is what Lila will remember so keep that in mind. Praying for each of you and give Sam an extra hug from all of us here in GCS. Love, Aunt Sheri, Uncle Jay & Grandaddy.

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