Lila has a colonization of a bacteria called mycoplasma in her lungs. That's the bacteria that causes walking pneumonia. She probably doesn't have that illness at this time (although we think Samantha does!) but has those bacteria living in her lungs. It likely becomes active whenever she gets sick which is part of why she has such a hard time. Also just having it in there makes her asthma medicine less effective and her lungs more "twitchy" as the docs in Denver like to say. Usually the treatment is 3-6 months on an antibiotic that she is allergic to. So they are consulting with the pulmonologist and will let us know tomorrow how they are wanting to proceed. Meanwhile, Lila's not supposed to be around people. I guess this is a contagious bacteria.
So this seems to be the missing piece of the puzzle. We knew she had severe asthma, irritated airways from the mold, moderate allergies, horrid reflux - but it still didn't seem quite enough to have her be as sick as she was. The docs said that maybe it was - but here is what we were missing. Every time her lungs would get inflamed this bacteria would jump right in and make it worse.
We have learned so much. There is still a ways to go in healing. We are all recovering - it's been a tough year and a half. We have work to do on the house to get it to where the doctors want it for Lila. We have to fight with Medicaid. I start working in two weeks. There are many house organizing and cleaning projects that just got put on hold. But I see the end. I believe it exists and it's there and we will reach it. Lila is still doing so well. I feel like I've been given a miracle.
No comments:
Post a Comment